Click here to watch a video of last year's Smile With The Stars Ball
On December 12th December, Lee went to bed a happy, young 24yr old man. On the previous afternoon, he had successfully undergone a soccer training assessment course which was to be the start of the next stage of his life - as a soccer coach on the West coast of America.
Tragically he never woke up - Lee was another victim of SUDEP, Sudden Unexpected Death in Epilepsy. Lee developed a mild case of Epilepsy at the age of 9, and the medication he took controlled his condition well - he experienced occasional nocturnal seizures, and led a normal, healthy life.
He knew the 3 most common situations that could trigger a seizure were excess alcohol, sleep deprivation and stress - he adapted his lifestyle to ensure the chances of these 3 situations arising were minimal.
Neither Lee, his parents Simon and Vicky or his sister Becky knew that Epilepsy could take a life, and following Lee's premature passing, a campaign to raise awareness of Epilepsy and reduce the stigma surrounding the condition was launched.
This campaign soon developed into the creation of Lee's Smile - a lasting tribute to Lee's achievements in his short lifetime, and a charity that aims to use research and awareness to get the answers that will save lives.