• In Loving Memory of

    Lee Johnson

    14th January 1986 - 12th December 2010

    Lee's Life
  • Our Charities are:

    SUDEP Action


    Epilepsy Research UK

    Our Charities
  • We take part in many

    Fundraising Events

    Fundraising Events
  • We are please to accounce for 2015...

    Smile With The Stars Ball

    6th March 2015

    Centenary Pavilion, Elland Road, Leeds

    More Information about Smile With The Stars

Welcome to Lee's Smile

On December 12th December, Lee went to bed a happy, young 24yr old man. On the previous afternoon, he had successfully undergone a soccer training assessment course which was to be the start of the next stage of his life - as a soccer coach on the West coast of America.

Tragically he never woke up - Lee was another victim of SUDEP, Sudden Unexpected Death in Epilepsy.

Lee developed a mild case of Epilepsy at the age of 9, and the medication he took controlled his condition well - he experienced occasional nocturnal seizures, and led a normal, healthy life.

He knew the 3 most common situations that could trigger a seizure were excess alcohol, sleep deprivation and stress - he adapted his lifestyle to ensure the chances of these 3 situations arising were minimal.

Neither Lee, his parents Simon and Vicky or his sister Becky knew that Epilepsy could take a life, and following Lee's premature passing, a campaign to raise awareness of Epilepsy and reduce the stigma surrounding the condition was launched.

This campaign soon developed into the creation of Lee's Smile - a lasting tribute to Lee's achievements in his short lifetime, and a charity that aims to use research and awareness to get the answers that will save lives.


Latest Fundraising Events

Memories of Lee

"12th December 2010 was the day that changed our lives forever. Lee was taken from us with out warning, suddenly our world collapsed around us. We have, however, taken great strength from the fantastic memories that can never be taken away. We'd love you to share memories of Lee that you have with visitors to our site - please enter them here. A smile costs nothing, but the memory of it lasts forever............"

Simon, Vicky & Becky

Read More Memories of Lee

Our Partners

We Support SUDEP in Action
We Support Yorkshire Brain Research Centre
We Support Epilepsy Research